Author - Influencer - Advocate
Ilana Jacqueline was named as one of Reuters Pharma Awards Patient Champion Awards 2021 finalists. The winner of this award will be a person or small group which identifies as a patient (or patient group), and who has provided other patients or people with …
Ilana Jacqueline | Patient culture will bloom wherever it’s planted. It started on message boards and trickled into Facebook Groups, it spread across twitter and broke through your Instagram feed, it wove it’s way through Reddit threads and has even erupted across TikTok. Every platform has …
by Ilana Jacqueline for WEGO Health. As any patient will tell you, there’s nothing like out of touch, unsolicited medical advice from companies to get them to slam the door in your face. When you’re sick and you’re trying to decide how to manage it …
This month an article came out in IG Living Magazine that I’d written months prior to COVID-19 coming on the scene. It was about my experiences as a Primary Immune Deficiency Disease Patient (A rare disease that increases my susceptibility to infection) and how I …
Are you subscribed to my YouTube Channel? On a recent episode of The Good Doctor, the disease “Severe Combined Immune Deficiency” (AKA: Boy in the Bubble Disease) was grossly misrepresented. I’m a primary immune deficiency patient and professional patient advocate. Here’s some facts about what …
Are you subscribed to my YouTube Channel? Spend the weekend with me as I do date night with my husband at Rex Baron, a new post-apocalyptic eatery in central Boca, get ready for a surprise party, show you my Bath and Body Works haul from …
Lauren Freedman of the Uninvisible Podcast interviewed Ilana Jacqueline about her work in patient advocacy, how her disease has impacted her as a professional, and a professional and what’s next for the best-selling author. Uninvisible is a podcast about invisible conditions and chronic invisible illness, …
Attention Palm Beach, Boca Raton, Delray Beach and surrounding areas: local patient advocate, Ilana Jacqueline, is looking for help with an upcoming fundraiser for a youth summit as part of The Health Advocacy Summit Organization. ABOUT The Health Advocacy Summit is a 501c-3 non-profit organization …
Below is an article written by Ilana Jacqueline featured in an issue of IG Living Magazine. (Sources can be seen at the full link at the bottom of this post.) Researchers are taking a closer look at intravenous immune globulin for its potential to stop …
by Ilana Jacqueline (As originally published IG Living Magazine for Ilana’s column regular column) Getting back to your life after a flare is a hardship in and of itself. Actually waiting to get to the point where you can begin the steps of recovering from …