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It’s Okay to Ask: Did They Wash Their Hands?

It’s Okay to Ask: Did They Wash Their Hands?

I’d like to think that I’m usually pretty on top of things. Any time I go to the doctor and they need to do a physical exam or test—I rear back and politely ask that before they touch me that they wash their hands and […]

Stop Drop and Roll: Acting on Infections with Immune Deficiency

Stop Drop and Roll: Acting on Infections with Immune Deficiency

As originally published in IG LIVING magazine for rare disease patients with Primary Immune Deficiency Diseases. When buildings burn you really start to get a feel for who people are. There are the victims. The fire-fighters. The spectators who scream, “WHY ISN’T ANYONE SAVING THEM?” […]

Don’t Embarrass Yourself: Here’s What NOT to Do Around a Service Dog

Don’t Embarrass Yourself: Here’s What NOT to Do Around a Service Dog

I was in my doctor’s waiting room the other day when a man with a service dog walked in. I knew he was a service dog because he was wearing a vest that clearly said, “SERVICE ANIMAL– DO NOT PET.” Then the door from the […]

3 Things You Should Know When Working with a Chronic Illness

3 Things You Should Know When Working with a Chronic Illness

(as originally printed in my regular IGLiving Magazine column) Whether you’re employed by a company, working as your own boss, are unemployed and hoping to become employed once again, or on disability and wondering if going back to work might be a possibility—there are a […]

Ilana Jacqueline Joins Nebula Genomics as Director of Patient Advocacy

Ilana Jacqueline Joins Nebula Genomics as Director of Patient Advocacy

BOSTON & SAN FRANCISCO. January 7th, 2019– Author, speaker and patient advocate, Ilana Jacqueline recently joined Nebula Genomics as their Director of Patient Advocacy. Nebula is a personal genomics company with a mission to build a large and trustworthy genomic and health data marketplace for consumers, researchers […]