BOSTON & SAN FRANCISCO. January 7th, 2019– Author, speaker and patient advocate, Ilana Jacqueline recently joined Nebula Genomics as their Director of Patient Advocacy.
Nebula is a personal genomics company with a mission to build a large and trustworthy genomic and health data marketplace for consumers, researchers and the medical community.
Using blockchain, Nebula ensures that consumers maintain anonymity and control of their data while being compensated for its use.
The Nebula platform will aggregate a critical mass of genetic information that researchers can analyze in order to accelerate drug development, streamline clinical trials, and usher in the era of truly personalized medicine.
Jacqueline previously worked as the Manager of Patient Advocacy for facial-analysis biotech, FDNA, the Managing Editor of the RARE Daily at Global Genes, and the President of About Time Public Relations. She currently sits on the board of two national health organizations — The Rare and Undiagnosed Network (RUN) and the Invisible Disability Association of America.
She writes a regular column in IG Living Magazine, a publication specializing in patient-centric editorials for infusion and immune deficient patients.
Her best-selling self-help book, Surviving and Thriving with an Invisible Chronic Illness, was published in March of 2018 by New Harbinger with a warm reception from the chronic, invisible and rare disease communities. Her mission continues in creating opportunities for patients to make an impact in awareness and research for the future of their health.
Learn more about Nebula at Nebula.org and more about Ilana at IlanaJacqueline.com.