In The News

• How to Utilize Microinfluencers (Featuring a Case Study on Ilana’s Tiktok)

• What I Wish I Knew About Choosing Sedation by Ilana Jacqueline for Health.com

• Ilana Jacqueline Appears as Expert Commentator on The Dr. Phil Show “Medical Gaslighting” 

• Ilana Jacqueline Appears as Keynote Speaker for 2022 Immune Deficiency Foundation Conference 

• Surviving and Thriving with an Invisible Chronic Illness Listed as Best Gift in New Guide in by CSL Behring

• Ilana Jacqueline Named as Finalist in Reuters Global Pharma Awards 2021 for Patient Champion Award: Patient Advocate

• Ilana Jacqueline Opens Up About Her Work in Patient Advocacy, Her Personal Patient Story, and Her Best Advice for Rare and Chronically Ill Patients in the Univisible Podcast with Lauren Freedman.

• 7 Must Read Books for Aspiring Psychiatrists Features “Surviving and Thriving with an Invisible Chronic Illness” (Online)

• “Careers & Chronic Illness Tips on MightyWell, Featuring Advice from Ilana Jacqueline (Online)

• What it’s Like to Date a Woman with a Chronic Illness from MEL Magazine, Quote from Ilana Jacqueline  (Online)

• Making Peace with Your Psoriatic Arthritis, Quote from Ilana’s book Surviving and Thriving with an Invisible Chronic Illness (Online)

• Business News Daily Advice on Employees Coming to Work Sick, Interview with Ilana Jacqueline (Online)

• Ilana Jacqueline Discusses Nebula Genomics Plans for World Rare Disease Day 2019  (Online)

• Ilana Jacqueline Appears on Lifetime TV, The Balancing Act to Give Health Update, Discuss World Rare Disease Day (TV)

• Ilana Jacqueline Joins Nebula Genomics as Director of Patient Advocacy  (Online)

• Ilana Jacqueline Featured on Two Disabled Dudes Podcast (Podcast)

•  Ilana Jacqueline’s New Book Featured in Boca Life Magazine, Fort Lauderdale Daily, Gold Coast Magazine (Magazines)

• Mashable: 12 Activists Share What They Want You to Know About Rare Disease (Online)

• Lifetime TV: Surviving and Thriving with an Invisible Illness (TV)

• Ilana Jacqueline Speaks at Kleine-Levin Syndrome Conference (Speaking Event)

•  Ilana Jacqueline Speaks at Dysautonomia International Conference 2018, Nashville (Speaking Event)

• PsychCentral.com Features Chronic Illness Book by Ilana Jacqueline (Online)

• THE MIGHTY: Why I Wrote the Book I Wish I Had on Managing Life With Chronic, Rare Illnesses (Online)

• Huffington Post: Chronic Illness, How to Repair Your Life After a Flare-Up (Online)

• Everyday Health: Ilana Jacqueline Story (Online)

• WEGO Health Webinar: Are You Chronically Capable? Featuring Ilana Jacqueline (Speaking Event, Online)

• Falling Through the Cracks Podcast Appearance, Featuring Ilana Jacqueline (Podcast)

• The Balancing Act’s Ongoing “Behind the Mystery: Rare and Genetic Diseases” Series Features Rare Disease Day Episode on February 28th (TV)

• Mashable: 9 Ways to Support People Living with Rare Diseases (Online)

• Cosmopolitan: Ilana Jacqueline Story (Online)

• PharmaPhorum: Rare Diseases Perspectives from Caregivers and Patients (Magazine, Online)

• Crowdmed: Can Facebook Help Measure the Intensity of Flares? (Online)

Genomics Collaborative in the News:

• FDNA Releases New Findings for Sanfilippo Syndrome Resulting from Genomics Collaborative Partnership
• FDNA Launches Global Genomics Collaborative for Rare Genetic Diseases
• AI and Facial Diagnosis Company FDNA Sets Up Genomics Coalition
• FDNA Launches Genomics Collaborative® with Multiple Research Partners Globally