Resources

She’s here to help.

Check out the resources below for patients like you.

Chronic Illness Catch Up: A Time and Money Breakdown for Patients

Have you ever tried to explain how much time and money is spent on dealing with your disease? I sure have. So I created a series called Chronic Illness Catch Up where you get the full break down of what I spend to stay alive! Check out the Powerpoint HERE and the TikTok video HERE.


The Pain Template

Free Download: My Pain Menu Are you a chronic pain patient? Here’s how I measure my pain in a way that helps my doctors understand it. Check out my example Pain Menu here and download your free Pain Menu template here.

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Choosing Sedation

Choosing Sedation Not every moment is meant to be suffered through. Check out this article on asking for sedation.

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CEFALY Discount

CEFALY Discount Dealing with migraine? Use code “ilana15” for 15% off the CEFALY migraine device. Click here to visit CEFALY and learn more.

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Behind the Mystery

Lifetime TV’s Behind the Mystery: Rare and Genetic is a show that is devoted to advocating for rare and genetic diseases. The series clarifies the often-complex issues by offering easy-to-understand explanations from top experts in the field through partnerships with foundations and pharmaceutical companies. BTM was created by Ilana Jacqueline’s mother, Carri Levy and co-creator, Molly Mager.

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Pain in the Emergency Room

Electronic Medical Records: Medical Gaslighting Are you being medically gaslighting through your electronic medical records? Ilana Jacqueline explains what your rights are.

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Rare Disease Patients

Living with a rare disease and looking for new providers? Take a look at these three questions to ask a new doctor.

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