Resources

She’s here to help.

Check out the resources below for patients like you.

Close-up of hospital room medical equipment panel — from personal hospitalization experience
Screenshot related to patient advocacy or resources by Ilana Jacqueline

Chronic Illness Catch Up: A Time and Money Breakdown for Patients

Have you ever tried to explain how much time and money is spent on dealing with your disease? I sure have. So I created a series called Chronic Illness Catch Up where you get the full break down of what I spend to stay alive! Check out the Powerpoint HERE and the TikTok video HERE.


Screenshot of resources or reference material from Ilana Jacqueline's patient advocacy work

The Pain Template

Free Download: My Pain Menu Are you a chronic pain patient? Here’s how I measure my pain in a way that helps my doctors understand it. Check out my example Pain Menu here and download your free Pain Menu template here.

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Screenshot of patient advocacy resources or reference guide by Ilana Jacqueline

Choosing Sedation

Choosing Sedation Not every moment is meant to be suffered through. Check out this article on asking for sedation.

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Screenshot of patient resources guide by Ilana Jacqueline

CEFALY Discount

CEFALY Discount Dealing with migraine? Use code “ilana15” for 15% off the CEFALY migraine device. Click here to visit CEFALY and learn more.

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Screenshot of patient resources or advocacy material

Behind the Mystery

Lifetime TV’s Behind the Mystery: Rare and Genetic is a show that is devoted to advocating for rare and genetic diseases. The series clarifies the often-complex issues by offering easy-to-understand explanations from top experts in the field through partnerships with foundations and pharmaceutical companies. BTM was created by Ilana Jacqueline’s mother, Carri Levy and co-creator, Molly Mager.

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Screenshot of online resource or reference material for patient advocacy

Pain in the Emergency Room

Electronic Medical Records: Medical Gaslighting Are you being medically gaslighting through your electronic medical records? Ilana Jacqueline explains what your rights are.

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Illustrated health tips social media graphic — used in patient resources context

Rare Disease Patients

Living with a rare disease and looking for new providers? Take a look at these three questions to ask a new doctor.

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