Latest Blog Posts
Don’t forget to connect where I post all my blogs on LinkedIn.
-
Have CVID With Complications? Get Paid $120 for a 1-Hour Zoom Interview
Living with complex CVID and complications like an enlarged spleen, low blood counts, or lung scarring? A paid CVID study is offering $120 for a 1-hour Zoom interview. See if you qualify.
-
Here for the Reaping: I Never Wanted Privacy
Genetic privacy matters. But for patients living with rare or undiagnosed disease, the right to say yes to sharing medical data matters too. Why I never wanted privacy.
-
10 Remote Work Accommodations for Chronic Illness and Disability
Working from home is not an accommodation. Ten remote work accommodations for chronic illness and disability, plus the request language to put in the email.
-
The Trust List 2026: 20 Medical Voices Worth Following
Selected by Ilana Jacqueline Who decides which health information deserves your trust? Social media has given patients unprecedented access to physicians, nurses, pharmacists, and other medical professionals. It has also made it harder than ever to tell thoughtful health education apart from misinformation, oversimplification, and content designed primarily to go…
-
Combined Variable Immune Deficiency Patients | $280 Opportunity
Patients living with CVID have an opportunity to earn $280 for market research on the condition. Participants are asked to fill out a short pre-screener survey to apply. Curious about the criteria? Applicants must: TAKE THE SURVEY When you complete the survey, please mention “Ilana” as your referred source. Want…
-
You’re Prescription Costs HOW MUCH!? A Patient Guide
BIG NEWS in GLP-1 & Medicare! Worth watching how this actually lands for patients. A coverage pathway that runs through retrospective prior authorization still puts the documentation burden on the clinician and the uncertainty on the patient — you don’t know if you’re covered until after you’re prescribed. Access on…