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Chronically Employed: When Disability is Not an Option

Chronically Employed: When Disability is Not an Option

“Close the door, please.” It’s usually a pretty small request, but if there’s one thing you don’t sign up for when you’re admitted to the hospital is privacy. Like, forget it. Finally get to sleep? Wake up! Time to take some blood! Have to pee? […]

The 7 Most Common Mistakes Publicists Make

The 7 Most Common Mistakes Publicists Make

Before I was in PR I was in newspapers, magazines and blogs. For one of my more popular online magazines, I would get anywhere from 50-100 pitches from publicists on any given day. The majority were deleted, laughed at, junk-mailed and spam-blocked. There were a […]

It’s Okay to Ask: Did They Wash Their Hands?

It’s Okay to Ask: Did They Wash Their Hands?

I’d like to think that I’m usually pretty on top of things. Any time I go to the doctor and they need to do a physical exam or test—I rear back and politely ask that before they touch me that they wash their hands and […]

Stop Drop and Roll: Acting on Infections with Immune Deficiency

Stop Drop and Roll: Acting on Infections with Immune Deficiency

As originally published in IG LIVING magazine for rare disease patients with Primary Immune Deficiency Diseases. When buildings burn you really start to get a feel for who people are. There are the victims. The fire-fighters. The spectators who scream, “WHY ISN’T ANYONE SAVING THEM?” […]

Don’t Embarrass Yourself: Here’s What NOT to Do Around a Service Dog

Don’t Embarrass Yourself: Here’s What NOT to Do Around a Service Dog

I was in my doctor’s waiting room the other day when a man with a service dog walked in. I knew he was a service dog because he was wearing a vest that clearly said, “SERVICE ANIMAL– DO NOT PET.” Then the door from the […]

3 Things You Should Know When Working with a Chronic Illness

3 Things You Should Know When Working with a Chronic Illness

(as originally printed in my regular IGLiving Magazine column) Whether you’re employed by a company, working as your own boss, are unemployed and hoping to become employed once again, or on disability and wondering if going back to work might be a possibility—there are a […]

Ilana Jacqueline Joins Nebula Genomics as Director of Patient Advocacy

Ilana Jacqueline Joins Nebula Genomics as Director of Patient Advocacy

BOSTON & SAN FRANCISCO. January 7th, 2019– Author, speaker and patient advocate, Ilana Jacqueline recently joined Nebula Genomics as their Director of Patient Advocacy. Nebula is a personal genomics company with a mission to build a large and trustworthy genomic and health data marketplace for consumers, researchers […]