Author - Influencer - Advocate
Are you subscribed to my YouTube Channel? On a recent episode of The Good Doctor, the disease “Severe Combined Immune Deficiency” (AKA: Boy in the Bubble Disease) was grossly misrepresented. I’m a primary immune deficiency patient and professional patient advocate. Here’s some facts about what …
Below is an article written by Ilana Jacqueline featured in an issue of IG Living Magazine. (Sources can be seen at the full link at the bottom of this post.) Researchers are taking a closer look at intravenous immune globulin for its potential to stop …
As originally published in IG LIVING magazine for rare disease patients with Primary Immune Deficiency Diseases. When buildings burn you really start to get a feel for who people are. There are the victims. The fire-fighters. The spectators who scream, “WHY ISN’T ANYONE SAVING THEM?” …