Tag: rare disease
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Have CVID With Complications? Get Paid $120 for a 1-Hour Zoom Interview
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Living with complex CVID and complications like an enlarged spleen, low blood counts, or lung scarring? A paid CVID study is offering $120 for a 1-hour Zoom interview. See if you qualify.
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Here for the Reaping: I Never Wanted Privacy
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Genetic privacy matters. But for patients living with rare or undiagnosed disease, the right to say yes to sharing medical data matters too. Why I never wanted privacy.