Who is Ilana Jacqueline? Patient Leader, Rare Disease and Chronic Illness Advocate
Ilana Jacqueline is a best-selling author, marketing consultant and professional patient advocate based out of Boca Raton, Florida.
She is the voice behind the award-winning blog, Let’s Feel Better and the self-help book Surviving and Thriving with an Invisible Chronic Illness.
She served as the Founder and Editor-in-Chief of Today’s Teen Online, managing the entirely telecommuting staff of 80 writers. She ran her own public relations company, About Time PR from 2010-2016 helping small businesses, TV personalities and athletes to jumpstart their careers with mainstream media mentions.
As a rare and chronic disease patient and advocate she served as the Managing Editor for Global Gene’s The RARE Daily for five years. She groomed, motivated, and managed a large team of bloggers and wrote in-depth features and interviews.
She then became the Manager of Patient Advocacy at FDNA. During her time there, she developed the Genomics Collaborative program, which provided a way for patients, advocacy groups, doctors, researchers, labs and other biotechnology companies to utilize the company’s unique technology to further disease understanding.
In 2018 she joined the boards of RUN (Rare and Undiagnosed Network), HAS (Health Advocacy Summit) and IDA (Invisible Disabilities Association) to help continue her mission to generate awareness and support for those with chronic invisible diseases.
She has a regular column in the health magazine IG Living and has a long history of freelance writing.
Some publications she has worked with include The Huffington Post, Cosmopolitan, Marie Claire, CrowdMed, AOL, xoJane, xoVain, Everyday Health, WEGO Health, Patient Worthy, MultipleSclerosis.net, Mashable, PharmaPhorum.com, The Boca Raton Observer, Boca Raton Magazine, Boca Delray Life, The Palm Beach Post, The Sun-Sentinel, The Miami Herald, Palm Beach Illustrated, The Happy Herald, Materniteens, and Lemondrop.
Ilana speaks at medical, patient, and pharmaceutical conferences as well as consults with companies on how the patient voice can improve the design of healthcare.
She is always looking for her next big adventure.
Reach out at IlanaWrites@gmail.com.
Listen to her most recent interview with Uninvisible Podcast below: