Author: Ilana Jacqueline
-
Have CVID With Complications? Get Paid $120 for a 1-Hour Zoom Interview
•
Living with complex CVID and complications like an enlarged spleen, low blood counts, or lung scarring? A paid CVID study is offering $120 for a 1-hour Zoom interview. See if you qualify.
-
Here for the Reaping: I Never Wanted Privacy
•
Genetic privacy matters. But for patients living with rare or undiagnosed disease, the right to say yes to sharing medical data matters too. Why I never wanted privacy.
-
10 Remote Work Accommodations for Chronic Illness and Disability
•
Working from home is not an accommodation. Ten remote work accommodations for chronic illness and disability, plus the request language to put in the email.
-
The Trust List 2026: 20 Medical Voices Worth Following
•
Selected by Ilana Jacqueline Who decides which health information deserves your trust? Social media has given patients unprecedented access to physicians, nurses, pharmacists, and other medical professionals. It has also made it harder than ever to tell thoughtful health education apart from misinformation, oversimplification, and content designed primarily to go…
-
Combined Variable Immune Deficiency Patients | $280 Opportunity
•
Patients living with CVID have an opportunity to earn $280 for market research on the condition. Participants are asked to fill out a short pre-screener survey to apply. Curious about the criteria? Applicants must: TAKE THE SURVEY When you complete the survey, please mention “Ilana” as your referred source. Want…
-
You’re Prescription Costs HOW MUCH!? A Patient Guide
•
BIG NEWS in GLP-1 & Medicare! Worth watching how this actually lands for patients. A coverage pathway that runs through retrospective prior authorization still puts the documentation burden on the clinician and the uncertainty on the patient — you don’t know if you’re covered until after you’re prescribed. Access on…
-
Plasma: Global Patient Survey
•
Behind every dose is a donor. I’ll never know the names of the strangers whose plasma keeps me alive — but this is for them, and for every patient who depends on a plasma-derived medicine. There’s a first-of-its-kind global survey asking what we actually know about where our medicine comes…
-
AI Is a Double-Edged Tool in the Exam Room — 40 Patients Told Me Why
•
There is no shortage of opinions about AI in healthcare. There’s the hype — AI will diagnose us all and fix a broken system. And there’s the backlash — it hallucinates, it’s dangerous, keep it away from medicine. What I couldn’t find anywhere was the voice in the middle: the…
-
Why Medical Malpractice Firms Are Losing Clients to Silence
•
If you’re a medical malpractice attorney, your competition isn’t other firms. It’s the silence. Every day, patients who were genuinely harmed decide not to call anyone. Not because they don’t have a case — but because they don’t know they have one. Because they assume every lawyer is a shark.…
-
Media Avoidance: bringing vulnerable brilliance out of the hesitant founder
•
There’s nothing my husband and I love more than being home. Before anything social, we bargain with each other like hostages. “What if I said my car broke down?” “What if we suddenly came down with a terrible head cold?” “Do I really have to go?” And every time, we…